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Our family is fighting a battle against a rare disease.

Our family is fighting a battle against a rare disease.Our family is fighting a battle against a rare disease.Our family is fighting a battle against a rare disease.

We need brilliant minds to join us. Help us uncover answers, accelerate breakthroughs, and change lives.

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Understanding MBD5 Deletion

Our Purpose

For almost a decade, I’ve watched MBD5 Deletion and Mitochondrial Disease challenge my daughter. Medical research holds the key to hope, but progress is too slow. We’re building a team to tackle this head-on. Driven by science, fueled by purpose. Join us to make a difference that echoes beyond our family.

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Join Our MBD5 and Mito Research Mission

Discover our family’s journey battling MBD5 deletion and mitochondrial disorders. Learn about our mission to find answers and explore how you can contribute your expertise. Connect with us via “Contact Us” to join our cause. We’d value your insights. Enjoy exploring our site and the knowledge we’ve shared.

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Contact Us

Time is running out for us. If you’re ready to tackle MBD5 and mitochondrial disorders with urgency and precision, my family is ready to support you with pathological tissue, samples, and signed releases to pursue answers. Reach out today to join our mission!

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